Dystonia Good Story
Inspiring stories of people with dystonia
This website is dedicated to people with dystonia, their relatives and friends. doctors, physiotherapists and all individuals who are interested in the subject. This website present authentic stories written by people with dystonia who have overcome the limitations of the disease, whose symptoms were gone for some reason or who have learned to enjoy their lives despite the disease symptoms. The stories are intended to inspire others and give them valuable advice useful in the fight against dystonia.
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Dear All, My name is Adam and I have cervical dystonia since 2006. I am the founder of a support group for people with dystonia in Poland and an active member of the society. Therefore, I come across many different cases of this rare diseases on a daily basis. I know that each patient may suffer from different symptoms and that their condition may depend on different factors. Following the lives of people with dystonia I got the idea to create a platform for sharing authentic stories which can be a sources of valuable advice and help other people improve their health condition. And that’s how Dystonia Good Story was born. I strongly encourage you to join in and contribute to the development of this site. Kind regards